VIDEO: Mother building playground for disabled children

CNN
Monday, October 28, 2013 - 12:48pm

A Louisiana mother has made it her mission to build a park accessible to children with disabilities.

She's inspired by her 20-month-old son who has been diagnosed with a rare condition.

Hillary Sirmon is a "supermom." She has two little girls ages five and three and a one-year-old boy who is fighting an extremely rare genetic condition.

Bringing up this bunch seems like a full time job, but not for Hillary.

She's expecting a fourth, and she's building a park where everyone can play.

Having a child with a rare condition you just feel helpless.

This will feel like I've actually been able to help Benjamin.

Benjamin was diagnosed with Centronuclear Myopathy.

His condition has no cure. Benjamin lives on life support, and his life expectancy is less than 10 years.

We go day by day and treat the symptoms and we just live life like he's going to be with us forever but, make the most of every day that we have with him and the girls.

Hillary wants him to enjoy life and part of that is playing at the park, but most aren't designed for kid like bBnjamin.

Soon, Hillary hopes to change that.

She's gotten the parish to donate East Bank Bridge Park in Destrehan.

They're also paying for a foundation, and in about a year she hopes to bring benjamin and his sisters to a new inclusive playground.

She's calling it miracles to milestones.

It started out for Benjamin, her son, but then it became more for the community in which she lived in.

There's something for everyone.

There are ramps throughout the whole system so a wheel chair can go through the whole thing.

There's transfer surfaces from the playground to the slide, so if a kid is strong in the arms but unable to move their legs they can transfer over and slide down.

The colors are chosen, contrasting colors, so someone with vision difficulties, it makes it a little easier for them to maneuver.

Even parents that are maybe wheel chair bound can also come and play with their children on the playground.

Kids like Benjamin are here for a reason. They are not here for us to feel sorry for them. They are not here for us to feel pity for them. They're here to change all our lives and he's definitely changed ours.

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